THE INVISIBLE CHRONIC ILLNESS: ENDOMETRIOSIS, WHAT DOES IT LOOK LIKE?
by Kel
1. The pain can be truly incapacitating.
For years I was living with excruciatingly painful periods, suffering in silence, thinking it was normal. I associated endo pain with period pain and forced myself to push through the pain and deal with it, when I really it should have never became just another regular part of my life. I wish I would have gotten checked out sooner. Getting a proper diagnosis was the best thing I've ever done. Living with pain is not OK, get checked out!
2. Symptoms don’t only happen when you have your period.
Endo can also cause symptoms besides pain, like diarrhea, constipation nausea, and fatigue, which can all be worse during your period. Also, infertility is the biggest endo complication that can occur anytime.
3. You are not alone
My biggest pain was having to suffer quietly through my endometriosis and fibroids, wishing I could share my struggles with someone who understood.
So I set out to build my own tribe. The MAGANO tribe, for women who feel like there is no one out there who understands what they are navigating, a community that I wished I found a long time ago.
There are no judgements, no pressure to be perfect. You are able to be yourself and be vulnerable.
No matter what you are going through, we are a tribe of women who are here for you. You are not alone. Your struggles are not to be ashamed of.
4. Trying to get a diagnosis can be exhausting and frustrating.
It can take years of attempts to finally find a doctor who recognizes the symptoms and receiving a diagnosis can be rollercoaster of emotions. Listen to your bodies and don't take no for an answer, especially when I know something is wrong.
5. Your body isn’t the enemy, even if it feels like it.
For so long I felt at war with my body both physically and emotionally because of the pain and bloating. I hated it because I didn’t understand that my body and I are actually in this together.
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